Gatsby
Life has definitely been crazy. Still going to never-ending doctor appointments trying to figure out this pain. I was in the hospital most of last week (I guess that IS a never-ending doctor appointment, HA!) They did some more tests, a HIDA scan of my liver, which showed a slight abnormality but nothing that would be causing my pain. Okay, so there is something wrong with my liver, but it’s not important…? Oy. I don’t get it.
They also did a full EGD and Colonoscopy while I was in the hospital. I had to drink a gallon of nasty thick salty liquid that was supposed to taste like pineapple. Blech.
They found ulcers on both ends, which may explain the bleeding but they’re not sure. I have to go back for another procedure in three months. Oh joy. I am just hoping they will do the right procedure this time.
See, I went and saw a G.I. doctor the Friday before I ended up in the hospital. Her name is Dr. Mann and though she was fairly nice in the office, I’m not sure what to think of her bedside manner. I clearly told her about my pain, how long, where, etc. She wants to do an EGD, Colonoscopy, and another procedure called a Double Balloon Enteroscopy. She said she wanted to do all this under General Anesthesia because the Double Balloon Enteroscopy is sometimes painful. (Especially considering that I always wake up with the Conscious Sedation and try to pull the tubes out. It’s just a reaction to the discomfort of the tube down my throat, I very briefly remember it. I do remember this time I woke up with restraints on! Ha.) But they could not, for some reason, get an anesthesiologist until March, so Dr. Mann called me and said she would schedule the procedure for under Conscious Sedation in January. I tried to explain to her that I could NOT wait that long because my pain had gotten worse. She said that she couldn’t do anything, and told me to go to the ER. So, I did and they admitted me. But they only did part of the tests I needed, so now I have to drink that nasty stuff all over again. Now I just have to wait until they get an appointment for the right procedures with General Anesthesia.
Seriously…I am 19, I should not have to be fighting with doctors! I had a doctor appointment today with Dr Sokol and I was explaining to her everything they did in the hospital. She was surprised I know as much as I do. I have to be involved in my health care, it is my body, I want to know what they are doing to me! On a little brighter note, my iron levels are way up. They were at 4 and now it is over 120! Think they overdid it much? Haha well, at least I’m not passing out all the time!
The doctors keep giving me all these different pain medications because none of them have helped so far. I just gave up on taking them altogether. I don’t want them to mask the pain, I want to figure out what is causing it in the first place. So for now, I’m dealing as best I can without any relief. I am afraid the pain will keep building up and building up until I am in tears like last time, but even when that happened, I was taking Morphine pills. It’s a lost cause really.
The semester is almost over, thank God! Just four more weeks. I can handle that.
I just found out my therapist, Laura is “taking a break” from therapy. I’m torn about it but I do not want another therapist. I seriously think 17 is enough.
More Later,
KJ
