Me And My Sister!
I went back to the LPCH hospital on April 23rd. I was given another IV because I was severely dehydrated again. No surprise there. Then they transferred me over to another hospital called El Camino Hospital. Stanford rents out two units over there. One of which is called Comprehensive Care Program (CCP).
They put me in this unit which is for teens with eating disorders. I have to say I was very skeptical at first, and well…kind of pissed off they put me there. But I really think it helped me a little bit. At first, The nurses were all being very pushy telling me to drink more and didn’t understand gastric bypass surgery in the least. I got very frustrated and tired of telling each nurse everything they needed to know to take care of me.
I was there until May 2nd, when I was just starting to make progress with some pureed food and working with a counselor and Occupational Therapist to work through the pain. My insurance decided that I didn’t need “rehab” and wouldn’t answer the doctors calls. Three of my doctors and my surgeon were willing to have a conference call with the health insurance and they still did not answer the calls. I still have several doctors that want me to go back to CCP and they are still fighting with the insurance.
My insurace (Healthy Families/ HealthNet) has told my doctors that “Letting me go to Stanford and have surgery was a slip up in their paperwork.” And they no longer want to cover followup visits. Well guess what people, I HAVE to go back to Stanford now, whether you like it or not! So it looks like we’re in for another insurance fight.
As of right now, I’ve been in Chico for the past week and am going to stay for another week. I had an appointment at Stanford on the 20th but it was changed to the 27th because the adult surgeon, Dr. Morton won’t be there on the 20th. (who I have to see now, also because the pediactric surgeons don’t know what the hell to do with me). I think being in Chico has been really good for me. My sister, Angie is helping me a lot. She keeps me going.
After I got home from the hospital, (yes, I admit it) I gave up. Everything. All I was doing was sleeping all day, occasionally taking a walk. I stopped taking all my medication cold turkey and was drinking maybe 3 oz a day and half of a nutritional drink, which is about 100 calories. I’m doing a lot better than I was. I’m drinking 3-4 nutritional drinks per day and drinking 30-50 ounces a day. And with a lot of pushing from Angie I’m cautiously trying to eat a few foods. Honestly though, the smell of food makes me nauseious.
On top of all of this, Dr. Morton saw me on May 6th. He said if my pain and burning in my stomach had not gone away by the 20th (now the 27th) he wants to do an exploratory surgery and go into my closed off stomach and intestines.
Oh, and just for the icing on the cake, I had to make one of the hardest decisions of my life and put my baby girl, Daisy, to sleep on May 9th. She was 8 years old and had a bone tumor in her shoulder that was causing her a lot of pain. I love you baby and I miss you…
Daisy December 16th, 2000 – May 9th, 2009
One of the pictures Angie took of me out at Chico State. 
I was told there are 5 males, and I know that Tudor, and Tom are two of his brothers. Let me know if you know of any of the others!
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